Wednesday, September 8, 2010

$36,000....REALLY???

Morgan was really tired last night. She had a few friends come over and watched 4 Harry Potter movies! Today she was a little nauseated and tired. At 3:30 we went back to the doctor and she had her first shot of Neulasta.....just as the nurse told us it cost about $6,000 each!!!...and she has to have it six times!! But it is very worth it since it helps her bone marrow build up white blood cells to help her fight off infections. Thank heavens for insurance! This shot will most likely make her bones ache but we are told that she should feel much better by next week. So for now it is Ibuprofen and Compazine.

Thanks to Aunt Jamie (RN) for staying with Morgan while I went back to work today. She has been to all of our doctor appointments and sat with us through the chemo. It REALLY helps to have a medical mind to help decipher all the information we have been given. We have been told that Morgan will be experiencing a "bad day" which is supposed to fall on either Friday or Saturday. I will be staying home with her then.

The surgeon called me with the genetic test results. She does NOT have the gene mutation so there is no need to test any of the rest of us. It appears that this is just a random cell mutation. I always knew Morgan was random but this is absolutely ridiculous!

Tonight we had dinner delivered by the HHS FCCLA officers and Mrs. Shore. They brought a basket full of pink items like fuzzy socks, a blanket, bubble bath, and a movie. Thanks a bunch! We are so lucky to have such good friends. We have an entire table full of cookies, cakes, cards, movies, and other treats. Thanks to everyone.

Don't forget it is Morgan's Sweet 16 Birthday tomorrow!!!

2 comments:

  1. HAPPY BIRTHDAY MORGAN!!!!!!!!!!!!!!!!!!!!!!!!!
    WE ARE ALL WEARING OUR WRISTBANDS, WEARING PINK AND PRAYING FOR YOU! WE HOPE YOUR CELEBRATION ON SATURDAY IS SO FUN! KEEP UP THE GREAT ATTITUDE, KNOW THAT THERE ARE ANGELS WITH YOU ALWAYS AND KNOW THE SCOTT FAMILY LOVES YOU!!!
    THANKS FOR THE BLOG KYLEE AND FOR ALL THE UPDATES FROM YOU AND YOUR MOM! LOVED BEING WITH YOU JANA AT SWISS DAYS! SPA TREATMENT DAY FOR ALL OF YOU, ESPECIALLY MORGAN, WHEN YOU ARE READY.
    ALSO, PLEASE TELL RILEY THAT WE LOVED BEING WITH HIM ON HIS SPECIAL BAPTISM DAY!!! A MAJOR STEP IN RWH (RETURNING WITH HONOR).
    LOVE YOU ALL!
    AUNT LAURIE

    P.S. MAYBE MORGAN WOULD LIKE TO COME HANG OUT, IN OUR NEW THEATRE ROOM, WITH JESSIE ONE DAY....

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  2. I'm so glad that you have so much support to help you guys through!! WOW, talk about expensive $36,000.00!! I hope that she will be able to somehow have a good day for her 16th birthday!!

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